USHER SYNDROME AND DEAF-BLINDNESS

INTERNATIONAL USHER SYNDROME AWARENESS DAY RALLY 2021 ABUJA, NIGERIA.    

Making a Significant Change in Africa. 

Innocent Aniekan the Founder of AFRICAN COMMUNITY CHANGER ORGANIZATION (ACC) Joined the Organisers LionHeart Ability Leaders International Foundation (LALIF) in Conjunction with National Commission For Persons with Disabilities (NCPD) Awareness Rally to Stop Usher Syndrome and also to build a future for individuals with Deaf-blindness in Abuja, Nigeria.



THEME: OPERATION STOP USHER SYNDROME: 

Usher Syndrome is a rare genetic disorder caused by a gene mutation. This problems results in a combination of hearing and visual impairment, and is the leading cause of combined deafness and blindness (Deaf-blindness) in individuals worldwide.


Several of the affected individuals end up with total blindness alongside varying degrees of hearing loss or total deafness. 

Usher Syndrome spread easily because of mass ignorance and a severe lack of genetic testing and counseling facilities. The Syndrome has no known cure and affects a person's hearing, vision and balance. 

Individuals are mostly deprived of their fundamental human rights and locked away in their homes because of the ignorance of their family, teacher, doctors and others about their needs.


Individuals with Usher Syndrome and Deaf-blindness can learn and be successful. We only need to give them the opportunity to visualize their dreams.




Reference

Lionheart Ability Leaders International Foundation

National Commission For Persons With Disabilities

Comments

  1. UnknownSeptember 15, 2021 at 10:24 AM

    All physically challenged individuals deserve to be acknowledged and loved. More Grace Presi

    ReplyDelete
  2. UnknownSeptember 15, 2021 at 1:42 PM

    All humans need to be physically well. Thank you for the attention you pay to the human beings Pres..
    Congratulations for all these awereness campaigns you organizes.
    Strength and courage to you, to us...
    Together, we will save the world...💪🏾💪🏾💪🏾✊🏽✌🏽✌🏽✌🏽
    👏👏👏

    ReplyDelete
  3. UnknownSeptember 15, 2021 at 10:32 PM

    This is great things that people should consider doing it more often. Regular check ups in health center really needs to be emphasized for earlier treatment of health issues like this. There is also needs of educating the community about valuing and helping people with Usher syndrome.

    ReplyDelete
  4. UnknownSeptember 16, 2021 at 4:58 PM

    Many people need to be loved and taken care. The world will be a better place with all you guys in it. Thanks for you've done!

    ReplyDelete

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